EURORDIS Membership Meeting

EURORDIS Membership Meeting

Each year, EURORDIS holds the General Assembly attended by close to 200 of its member organisations.

These events are excellent networking opportunities for patients to meet other patient advocates from around the world. It is also a moment to get a full view of EURORDIS' activities, to exchange with staff, ask questions, elect the EURORDIS Board of Directors (full members only) and to understand the action plan for the following year.

The General Assembly is coupled every two years with a 2 day capacity-building workshop, specifically targeted to our members: the EURORDIS Membership Meeting (EMM).

In every other year (even number years), it is held in conjunction with the European Conference on Rare Diseases and Orphan Products (ECRD), the largest multi-stakeholder conference for rare diseases in Europe. 

EURORDIS members are invited to register for ECRD to learn more about recent updates in the rare disease community and meet patients from around the world. EURORDIS members benefit from a special registration fee to the ECRD. 

EURORDIS Board elections take place during the EURORDIS General Assembly to elect four new directors to the EURORDIS Board of Directors. If you would like to apply for a seat on the Board, please contact anja.helm@eurordis.org for more information. Please note that only representatives from full members can be candidates.